Stolen Laptop and Confidential Information at Sickle Cell HDQTRS

Part 6 of a 10 Part Series

As reported in a previous post, the Baltimore headquarters of the Sickle Cell Disease Association of America had a number of computers stolen from it's national office, reliable sources indicate one of the computers was used by a number of staffers, including staffers involved in a Federally funded project involving confidential patient and family data. 

The computer may have contained names and sensitive health information about sickle cell patients and their families. Reliable sources indicate that sickle cell member organizations, police, HHS, NIH, nor the board of directors were informed that sensitive information could be on the computers. 

There is more, the stolen laptop may have had confidential information on sickle cell member organization financial reports and data.

Is no one at SCDAA concerned?
Why were SCDAA Member organizations not alerted?

The Board and it's Executive committee should have asked to see the police report, when it was reported by the CEO to them (if it ever was). It is part of their fiduciary responsibility. 

The Black Rip Off Report will be requesting a copy of the report from the city of Baltimore Police Department.

It is clear that the SCDAA Acting CEO and Chairman have failed to establish a strong 'tone at the top,' allowing property management problems to continue even after the first computer was reported stolen. 

Reliable sources indicate there was little or no improvement or accountability for lost and stolen property and their was a compromise of sensitive personal and SCDAA financial data. 

Our sources indicate former staff members who worked for SCDAA complained to the Acting CEO regarding the breach and thefts, and were ignored.

Black Rip Off Report: It's a shame that we have people dying because they can't get health care and then we get a report like this. 

Read more on SCDAA HERE 

• ACORN group and national SCDAA group alike in many...
  
  
  
  • National Office of SCDAA - Sickle Cell Pimps

• National Sickle Cell Disease Leaders Under Fire!
  
  
  
  • Cover Up at the Sickle Cell Disease Association of...
    
    
    
    • SCLC Rip Off
    • The Monica Conyers Rip Off
    SCDAA Charity Rip Off

ACORN group and national SCDAA group alike in many ways

As reported in the Washington Post by Lena H. Sun, the liberal political organizing group ACORN is on the verge of bankruptcy following a string of disclosures about mismanagement that caused funding to dry up, according to a source familiar with the organization.

Leaders of the embattled grass-roots group and their advisers have been discussing options for weeks as donors, including foundations and government entities, have cut back on funding, according to another source, who took part in talks about ACORN's future.

Pablo Eisenberg, a senior fellow at the Georgetown Public and Policy Institute, said ACORN leaders have told him of plans to file for bankruptcy and form a new entity to serve as a public policy link to local and state chapters "without the name of ACORN."

Eisenberg said he was asked to be a board member of the new group but has not been in touch with ACORN's leaders for about six weeks.

The group's plans to possibly file for bankruptcy were first reported in the New York Times

The community organizing group was embarrassed last fall after a video sting that showed ACORN housing counselors advising two young conservative activists -- posing as a pimp and prostitute -- how to conceal their criminal business.

The episode prompted Congress to vote to prohibit the federal government from funding ACORN. The U.S. Census Bureau ended its partnership with the group.

An ACORN spokesman on Saturday declined to comment on possible bankruptcy plans. Communications Director Kevin Whelan released a statement on behalf of ACORN's chief executive, Bertha Lewis:

Black Rip Off Report: The ACORN Association Board is meeting (by phone) this weekend and will be making some very tough decisions about the future of their organization. . . . One has to wonder if there is something in the water in the metro Washington/Baltimore area? Check out the video below based out of Baltimore, Maryland

Our sources report members of the Executive Committee, board members and and member organizations of the nonprofit charity, Sickle Cell Disease Association of America are regularly reviewing this website/blog to gain further information which Board Chairman,  Atty Duane Bruce and Acting CEO, Elizabeth Simpson refuse to provide regarding their own mismanagement, and misappropriation of Federal, private, and donated funds. 

Duane Bruce 

Elizabeth Simpson, Acting CEO/COO


There have been complaints for sometime on these and other issues, but the chairman convinced the national board to "kill the messenger and the message," because this and other messages where sent in what the Chairman considered a crude or politically incorrect manner. OK Mr. chairman, Elizabeth Simpson wont be the first black woman charged with mismanagement and misappropriation on funds. There are many others who have done the same thing.

Like ACORN the SCDAA will be making some very tough decisions about the future of their organization, following a string of disclosures about mismanagement that may cause funding to dry up from Novartis pharmaceuticals, the National Institute of Health and healthcharities.org, all of whom are questioning their relationship with SCDAA at this time.

It's too bad that groups like ACORN, and SCDAA don't address mismanagement, misappropriation of funds when it's reported, before funding dries up. Maybe the should follow the SCLC.

Read more about SCDAA below:
 National Office of SCDAA - Sickle Cell Pimps

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• National Sickle Cell Disease Leaders Under Fire!
  
  
  
  • The Shelia Dixon Rip Off - Continue
    
    
    
    • Cover Up at the Sickle Cell Disease Association of...

SCDAA Charity Rip Off